UsherMom -

May 29, 2019

It’s been three years

May 29, 2019

It’s been three years since we had the diagnosis. Three years of being Ushermom. Sometimes it’s...

Apr 16, 2019

Soms lees je iets wat je zo raakt dat je er even niet goed van bent. Omdat je beseft, ik heb dat...

Mar 14, 2019

Ik heb de documentaire ‘Voor het donker wordt’ gezien. Ik was nieuwsgierig en...

Feb 26, 2019

I am so proud and happy to announce that on International Rare Disease Day, February 28th, the...

Feb 4, 2019

Jackson did not mention the not seeing in the dark anymore. Maybe I was wrong, maybe I am not. Who...

Dec 24, 2018

“Mommy I can’t see in the dark.” The words I dreaded to hear. The reality of it just hit me...

PR entrepreneur, wife, mother, runner, dog lover, born in Holland, living and working in Belgium.