Author: ushermom

walk a mile in his shoes

Jul 28, 2017 |

Doctors and specialists tell me it will take time, and lots of patience, but Jackson will walk. I...

Jul 10, 2017 |

I met her on a Wednesday, June 28th to be exact. The Usher Syndrome Coalition posted a video,...

Jun 7, 2017 |

People ask me a lot about Jacksons implants and that’s perfectly fine. It’s a complicated thing to...

Apr 11, 2017 |

A little while back I was invited to speak at a meeting for Usher parents. What was I going to...

Feb 28, 2017 |

A year ago, I did not think this date would ever affect us. February 28th: Rare Disease Day....

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hospitality entrepreneur, wife, mother, runner, dog lover, born and raised in The Netherlands, travels the world