Tag: Usher Syndrome Coalition

usher conference 2018

Jul 31, 2018

Last week the International Symposium on Usher Syndrome was held in Mainz. It was a 3-day event,...

Jul 10, 2017

I met her on a Wednesday, June 28th to be exact. The Usher Syndrome Coalition posted a video,...

Feb 28, 2017

A year ago, I did not think this date would ever affect us. February 28th: Rare Disease Day....

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PR entrepreneur, wife, mother, runner, dog lover, born in Holland, living and working in Belgium.